Sunday, May 23, 2010

I'm still here

Hi There, Sorry for not posting in sometime things have been nuts here for some time. With my hubby Karl having a type of bone cancer we have been going nuts having to go to all his doctors and now with Karl having all these blood transfusions 2 times each week now. I went to my doctor about having so much pain in my bones and all over my body/ hands and doc tells me after our talk and test that I have the worse case of Chronic Fibromyalgia. The pain of fibromyalgia is profound, chronic and widespread. It can migrate to all parts of the body and vary in intensity. FM pain has been described as stabbing and shooting pain and deep muscular aching, throbbing, and twitching. Neurological complaints such as numbness, tingling, and burning are often present and add to the discomfort of the patient. The severity of the pain and stiffness is often worse in the morning. Aggravating factors that affect pain include cold/humid weather, non-restorative sleep, physical and mental fatigue, excessive physical activity, physical inactivity, anxiety and stress.Pain inside the bones hurt so bad and I now know some of how Karl (hubby) feels when his cancer bone pain kicks in. I feel so sorry for him as he now has Chronic Fibromyalgia along with his bone cancer just his luck. Karl has lost so much weight now and is having a hard time keeping his blood counts up is why he has to get packed red cells and platelet 2 times each week and there not enough to bring up his counts. As of for now Karl is working hard to get this house done so we can sell it and move back to Texas. I believe once I have Karl in TX. with better cancer help than he will ever get here in Fl. Here in Fl. if one don't have big bucks they will not help you or take time out of there day to help or talk to you about cancer. I'm from Texas where the Doctors take time to help others and care for people as they do there own family not turn there heads due to being on medicare like doctors here in Fl do. Karl is sticking to June 30th to be all done with house and ready to move out of here on July 7th back home to NE Texas. Thanks to fibro I can't crochet , loom or touch my yarn now due to it burning my hands and so much pain in my hands and body to play with my yarn that I miss so much. Hugs have a great day/ nite.

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